So much for my goodbye to all that "stuff." Today we said hello again to a central line, antibiotics, and IV nutrition (TPN). Samuel had some indicators of infection and they started an IV in his hand "just in case" they needed access. Last night they decided to start antibiotics and take Samuel off of his feeds for five days.
Getting the central line is tricky because a PICC in a baby with pulmonary hypertension takes a lot of expertise and the other central lines carry greater risks due to Samuel's history of blood clot and infection. (Can you have a "history" when you are only two and a half months old?) When I head into the hospital today, he will have a central line and will be on two different antibiotics and TPN. I am grateful that they called to tell us what was happening so that it won't come as a surprise. Phone calls from the hospital at 11 p.m. and 7 a.m. stir a special kind of panic but it is good to know they will keep us in the loop even when we can't be there.
There have been many turns in this road with our beautiful Samuel. We'll see where this one leads us.
Such an amazing story. Your new boy is strong, and your bigger boys will understand in time, and I'm sure leaning on the biggest boy for support is always an option.
ReplyDeleteAnd I'm a friend when in need too!
Sherri
In our walks with Life there are always twists and turns . . . some we can see from afar and some we come upon unexpectedly . . . but Life seems to find a way to help us navigate, find strength from those around and continue on our journey. Today . . . Easter . . . know you are never far from our thoughts, love, strength and hugs..... UJ and Michael
ReplyDeleteMaybe Samuel likes to mix it up a bit, show his brothers that he can stir up a bit of trouble too.
ReplyDeleteBut on a serious note, we continue to pray for Samuel daily.
Lisa