Wednesday, November 9, 2011

NINE MONTHS OLD!

Last week our Samuel turned nine months old. This has always felt like a milestone with my babies - that point where they have been on the outside for as long as they were in. It was a bittersweet marker for Samuel, thinking of how his nine months have been, well, atypical. I don't feel like I have had nine months with him. But time is bit of an arbitrary system once you have children.

I read a beautiful article on another mama's blog today that brought home how parents are driven to make a future for our children but maybe we don't do well at really, truly loving in this blissful moment. I always appreciate the reminder to show up here and now. I think that's been one of Sam's gifts to me - simple things like playing peek-a-boo with Samuel and making lunches my kids really like take up more space they once did. Which is lovely. And I am pretty sure my kids won't miss getting on some magical success train because of it.

Okay, so here's a run-down on nine-month old Samuel:

He's recovered brilliantly from surgery. It was only a few days where his wounds were tender and he seemed out of sorts. His stomach had to stretch again after its time spent squished up through his diaphragm. He was eating smaller amounts more frequently (read: waking every two hours through the night like a newborn) and his weight gain slowed. But, even with his surgery and hospitalization, he gained weight respectably over the month and is now recovering more regular eating and sleeping patterns.
Here is Sam looking all peaceful and beautiful and innocent. One would not guess the torture he meted out on his old, tired parents through the night.

Samuel had his Audiology follow-up and we will go again in a few months. I was hopeful that he would get the "all-clear" on the hearing but we will continue to monitor developmentally just to see how he progresses. Good news is that his responses to the human voice sounds were perfect at all frequencies and volumes. This fits with the full-on interaction he has at home with his brothers and parents.

Daniel plays with Samuel and helps with his physiotherapy.
Here they are working on Sam's rolling skills.

Zachary reading bedtime stories to Samuel.

Diaphragmatic Hernia/Respiratory clinic included an "all-clear" from the dietician who follows his growth and the occupational therapist who follows his development and feeding. We also got the "all-clear" to take Samuel off of daytime oxygen.

Yea, okay. That's a big milestone. :) No more dragging a portable oxygen tank with us everywhere (although we will keep one in the car always just in case) and no more having Sam attached to 50 feet of oxygen tubing as we move through our house. The tube will no longer catch on furniture and feet and will no longer knock over dominos tracks in the making. Woo hoo!!! He will be hooked up to his nasal prongs for sleeping, still at an 1/8 litre, which truly feels like no big deal. His pediatrician said yesterday that she thinks he is just going to sail very quickly from here.

Samuel trying on Daniel's new winter boots. Okay, so he's not THAT big.

Samuel has also finally taken to eating solids. We are going slowly and helping him to desensitize his gag reflex. But he gets it. Yay! I am back in the world of stained bibs and pureed pears mushed into corners of my kitchen and wardrobe. Yay again!

Sam is doing well with eating solid food, which does not normally include the wings of toy planes.

Sam was a pumpkin for Halloween. And also Superman. Yes, he demanded a wardrobe change mid-way through the evening. Such a diva.

Pumpkin, as called by Daddy.

Superman, aka Super Sam.

And just for good measure, a photo of scary big boys.

Oh and for all you helmet watchers out there, I continue to do battle with the hideous helmet. Man, I have issues. The most recent hospitalization didn't do great things for Sam's head shape progress. He spent more time laying on his back and dealing with the helmet was not on the post-surgery radar. We are back on track again now, hoping for a lovely rounded skull and a farewell party for that stinkin' helmet in the next couple of months.

Onward.

6 comments:

  1. yippee!!! He is such a trooper . . . must follow after his parents. Beautiful pictures that convey what words cannot - bliss. Well...okay....Corinne, your words are just lovely . . . thank you for keeping us connected :-)
    love UJ and Michael

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  2. Yes, he is a Super Sam for sure!

    Lisa Z

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  3. Corinne,
    He is so gorgeous! Look at that perfect face free of tubes. How wonderful. Thanks for the update. We are always thinking of Sam.
    Carissa

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  4. LOVE IT! I am so tied to the ups/downs of Samuel's journey to fully claiming life and the challenges and successes that go with that. Your family looks so happy and Samuel looks like he has a very strong aura. Yup, as one doctor said, Samuel is going to keep sailing smoothly. WOW. Such tremendous blessings all around.

    Thanks for keeping this blog alive. I so enjoy watching Samuel grow and thrive.

    Dawn

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  5. Glad to see he is doing so well! And yes, we did the costume change too; from dalmation to superman lol! I still have to post Ramsey's superman pics!

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  6. He is delish, Corinne. Ab. So. Lutely delicious! Blessed be, you and yours.


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    Mx

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