Friday, July 27, 2012

A bit of normal

My little family of six is vacationing at the ocean. We drove for two days to get here, to be near the water, the rhythms of the tides as pulled by the moon, the salty air and slow pace. I have all the regular delight and gratitude at being able to have a holiday with my family.

I also have an extra dose of delight and gratitude for the "normal" that is represented by this trip. We have not had a family vacation the last two summers. Two years ago I was too sick with the early pregnancy to be any fun. Last year Sam was newly home from hospital, on oxygen and tube feeds and with a schedule full of appointments that kept us close to home. My boys have never complained about this, even once. They have been through a lot too and it was time for us to be able to get away, to recover a little from all that the last two years has brought us.

So here we are. We are hours and hours away from Samuel's hospital people. We did not bring oxygen or NG tubes or any medical equipment, just a couple of flats of his high-test formula. I did consult several of Samuel's folks before we left, making sure that he was okay to travel, that I remembered the protocols for managing his femoral blood clot, that I could look after his dietary and physiotherapy needs while we were away. I have a list of phone numbers and explanatory documents. The pediatrician printed off his growth charts for me in case we have to take him to hospital and they weigh him and freak out. I've counted his respiration rate much more often than I did at home. But otherwise, we are just doing this vacation thing. 

Boys with Buoys at low tide

Playing in the sand

Samuel is an awesome traveler. He complained very little during the long van ride and has slept well in his new digs. He has become extremely mobile during the past couple of days, to the point where we are saying, "has anyone seen Sam?!" and fanning out around our little house to see where he's hidden himself.

Just to be clear, it's not like we're ignoring Sam but he is quick with his new skills and he delights in tucking himself behind doors. He is creeping but not well and he is cruising but there is not enough furniture to get him everywhere he wants to be. So he uses a planful combination of rolling and bum scootching to get around. This is quite effective except for the fact that our skinny boy can't keep his pants up at the best of times so the backwards scootching motion does eventually relieve him of his trousers.
Heading for the exit (but will be pants-free by then).

Off to the beach now... 

13 comments:

  1. normal life ... ahhhh .... the glories of being a child near the beach with mom and dad looking on wistfully remembering their own childhood. Oh how delightful and peaceful. love and hugs UJ & Michael

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  2. Glad you are all having a wonderful, hopefully relaxing, holiday!

    LZ

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  3. It's awesome to hear about Samuel's new skills! Glad to hear you guys are able to finally get away for some fun in the sun!

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  4. Yeah for "a bit of normal". So happy to hear that you are all having such a wonderful time at your "vacation home" by the ocean. Big thanks for the pictures. Wishing you continued great weather and family fun.
    Yeah, Sam.....what great fun keeping everyone looking for your most recent hiding place! Love to all. Nana and Boppa

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  5. Love the scootching pic! So glad to see you are having a normal happy family vacation. Good for you!!

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  6. So lovely to read about your new adventures in a little bit of normal on a real holiday... The rhythms of the tides really do pull us to them, I can hear the delight and gratitude in your voice to be in such a peaceful, surrounding place of beauty and calm, and slower pace of life. Even if it is with the frenetic activity of four young boys... ;)

    Enjoy the remaining days of your vacation and hopefully with a margarita or two for Mama!

    Love to you all,
    Cathryn, David, Cameron & Colin

    xo xo xo xo

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  7. This. IS. Good.

    There is something healing about being near the water...

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  8. Isn't normal an amazing place that you never realized you would appreciate so much?! Enjoy every moment of it!

    :-) Patty

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  9. He's so cute!

    Hope you're enjoying your time away and being FREE of your 'old' normal.

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  10. Three cheers for Boys with Buoys, and Trouser-free!!! big love and misses, Mjam :)

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  11. Hi Amazing Samuel!
    My name is Jenna. You are a brave courageous fighter, You are a special miracle from god, a gift from above, earthly angel, a smilen hero. You are full of happiness, smiles, life and spunk.

    I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.

    I wrote this poem

    Each of us are Special

    Each of us different,

    No one is the same

    Each of are us are unique in our own way,

    Those of us who have challenges, we smile through our day.

    Those who of us who have challenges, we smile through our day.

    It doesn't matter what others say

    we are special anyway.

    What is forty feet and sings? the school chior http/www.miraclechamp.webs.com

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  12. So amazing to catch up on how normal life is becoming for your amazing family. Still working every now and then on weekends, and a day with a mom the other day brought back memories of all the days I was lucky to spend with you and caring for Sam. He looks amazing, and it is such a privilege to see how far you have come. So glad to hear your family is doing well and that there was even a vacation :)

    <3 Jody xoxoxo

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  13. Yea - the ocean is the best and I hope you arrived home to find sand still in your pockets, and that it stayed there after many more washes!!!
    Glad to hear Sam is still shining brightly, even if it is without his pants on!
    Much love,
    Netty

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