The big milestone was saying good-bye to Sam's home oxygen equipment. He had another oximetry on January 3 to double-check his overnight saturations. His mean saturation was 96 and he spent 98% of the night satting over 93. Sorry for those who don't know what all this means but my fellow CDH folks know... and it's good. Really, really good. Basically, Samuel's results are what any healthy person with normal lungs would be expected to do overnight. {insert moment of awed and grateful silence}
So I gathered up our various portable O2 tanks and our big emergency tank and the oxygen converter and some odds and ends. A really nice man from the respiratory home care company came and took it away. We haven't used the oxygen in a month but everyone was a little too suspicious to let it go. I did have a moment of thinking "what if he gets the flu *tomorrow*?!" but I know we will cross that bridge if/when we come to it.
Sam has taken off in the eating department. It's as though he just "got it" and now is eating pretty much anything. His almost non-existant reflux started to act up so I took the dairy out of his diet and it settled down again. I got a little carried away with all the good stuff I could use to fatten him up, but I have to remember that his GI system is still a bit more fragile than most.
Hey Mum. Betcha can't find where I be keeping my little green bowl of sweet potaters. |
I could have sworn that the jar said "turkey with vegetables" but this look clearly says "tequila with lime." Oh well, both options are equally festive. |
We are still quite home-bound as I try to honour Samuel's need for proper eating and sleeping time. Like any baby, he needs to eat and sleep to grow and get strong AND to not get sick; his needs in this regard are just bigger than other babies as he works to catch up developmentally. Plus, getting out of the house with 4 kids is just a lot of work. So I hope that our big boys didn't mind us having a pretty quiet Christmas. Wait, did I say "quiet?!" Wow. Okay, there is nothing quiet about our house. But it was a low-key holiday. The weather has been so mild that sledding and skating were out and trampolining was in. We even had a fire in the backyard one night and made smores.
The cold temps and fluffy snow of a few weeks ago are gone. We now have warm days (by "December in Canada" standards) as evidenced by the headless snowman and coatless children. |
I did take the boys - all four of them, by myself, thank you very much - to the new Calgary Science Centre for an afternoon. The displays were awesome but there were these signs that I am pretty sure said things like, "rub your hand here to see a cool thermodynamic reaction!" but to me clearly read, "rub your hand here where 17 bazillion other people with plague-like symptoms also rubbed their hands after sneezing and picking their noses so that there is no way in heck you're getting out of here without some hideous illness!" So I got to be that really cool mom saying things like, "Yes, isn't that neat?! Just be sure you don't touch your face until I can find my sanitizer gel!" I'm pretty sure it would not scar them socially if I made them wear haz-mat suits next time.
Tonight I said good-bye to my parents as they are heading off to Arizona for three months. I might have cried a little. But I didn't throw myself on the ground and grab their ankles and have a tantrum and beg them not to go. And I didn't even pay one of my kids ten bucks to enact this scene on my behalf. So that's good, right?! We'll be okay.
Tomorrow, my big boys go back to school. Even though they are loud and chaotic and they fight and scream and wake up the baby and distract him when he's eating and drive me mental, they also play and cuddle and say sweet things and make me laugh so so so much. And they do actually play really well with Samuel and have enough empathy to respond when I remind them that they are each three times his size and like mini-tornadoes. So I will miss them during the day.
Daniel engineers a new play system for Samuel. |
I will also miss their dad, who has been good to have around because it means I am not so outnumbered by the little people. Heh heh. Not very romantic, eh?! Okay, he's been good to have around because he loves us all really well and is a fabulous cook and is my partner and my prince charming. I might adore him a little. But don't tell him I said so because it will discredit me when I need to complain about the scuzzy dishrag balled up in the sink. Shhh.
Cute much? |
Even cuter much?! |
Congrats on getting rid of the "02 tanks" . . . . marvellous ... simply marvellous. Welcome to 2012. May the Austin Family prosper and grow in health and peace, (even with 4 rambunctious boys). We love reading your blog Corinne. Your voice is clear, honest and direct. Time to make it into a book. hugs-kissess UJ and Michael
ReplyDeleteOh! . . . we need pics of you Corinne..... Chris! take the camera!! :-) UJ
ReplyDeleteLOVE the squishy tequila face!!
ReplyDeleteCarissa
Your blogs are always so entertaining. I can especially relate to the phobia of germs! Happy 11 months Samuel...one more to go!!
ReplyDeleteHey Corinne,
ReplyDeleteWow! It sounds like things are moving along quite well for Sam and family. Nice to read the update and I sit and smile as I learn about his small victories and how well you are coping. I can only imagine what venturing out with your 4 kids by yourself must look like. Good for you Mom!
I agree...we need some nice pics of you Corinne! We need to see that radiant smile of yours.
Glad your Xmas and New Year's celebrations were good.
Hugs,
Irene
Super Sam continues his conquest of the world! Yay to no oxygen needed at home. Amazing Corinne. I have a somewhat natural germ-phobic attitude, but only have sanitiser gel in the car ;) I personally have no idea how you cope with the possibility of the older boys bringing home germs! And hey, you have a Spring-free Tramp? We bought one for the kids for Christmas, and spent Boxing Day putting it up. Summer downunder ;)
ReplyDeleteOh, and yes. Very mucho cute-o.
Mx
There is magic in these pictures and in Sam's smile! It is amazing to think that his first year is almost done and a birthday looms!
ReplyDeleteCorrine I loved your comments about the germs at the science centre!! I have a son, now in his thirties who had an immune deficiency and we lived with the realities of the risks for a medically fragile child and by extension his siblings. I laughed for a while because it took me back to the day I went to school with a bucket of bleach water to scrub down the classroom because of pink eye. The staff let me know they thought I was crazy - who cares - he is in his thirties, maybe because I was a little "crazy"!
Ha ha! Corinne, your stories remind of the wonderful crazy NORMAL boy play times that I find myself feeling rather nostalgic about.
ReplyDeleteWhat a time you have come through (and I get that it's not over) but congratulations! ...and you're right, there is a strength that comes like a surprise with these kinds of passages.
I am so pleased to know you in all the different levels that we have shared.
Many blessings and much love to you.
As you might tell from my comments, I am back-reading to catch up on my Samm-iness. The pictures in this are the best, your captions crack me up! And his chubster, muscle man arms in the first picture are great. They will help him be strong in the next couple weeks!
ReplyDeleteMegan